Welcome
You are invited to join cardiac centers from across the country in a network designed to improve care and outcomes for children with cardiovascular disease. Pediatric Cardiology programs of all sizes are invited to participate in this collaborative.
Click HERE to learn more about joining the collaborative.
Mission
The mission of the The National Pediatric Cardiology Quality Improvement Collaborative (NPC-QIC) is to improve dramatically the outcomes of care for children with cardiovascular disease.
The initial activities of the NPC-QIC are:
1) To build a sustainable collaborative network of pediatric cardiologists in North America, including a registry database, to inform future improvement projects. This network will provide opportunities for pediatric cardiologists to collaborate on quality improvement and research projects.
2) To plan and implement a quality improvement project intended to improve survival and quality of life of infants with HLHS during the "interstage" period between discharge from Stage 1 Norwood and admission for Stage 2 bidirectional Glenn.
What is JCCHD?
The JCCHD is a leadership alliance with representatives from:
- The American Academy of Pediatrics Section on Cardiology and Cardiac Surgery
- The American Heart Association Council on Cardiovascular Disease in the Young
- The American College of Cardiology Adult Congenital and Pediatric Cardiology Committee
- The American Board of Pediatrics sub-board of Pediatric Cardiology.
Who is eligible to be part of the patient population?
Any infant with HLHS or complex single ventricle undergoing a Norwood or Norwood-variant discharged home after surgery meets criteria for inclusion in the registry database.